Hosted by the South Thames Paediatric Network, in collaboration with Evelina London. Funded by Evelina London Charity, on behalf of the Tony Hudgell Fund
Clinical Lead AHP, South Thames Paediatric Network
Consultant in Paediatric Neurology and Complex Motor Disorders, Evelina London
Chief Children’s AHP, Evelina London
Network Manager, South Thames Paediatric Network
Clinical Director, South Thames Paediatric Network
Business Support Manager, South Thames Paediatric Network
Rationale
There are currently no agreed standards for the management of hypertonia in children and young people with neurological movement disorders, and treatment varies significantly across centres.
Aim
To develop a consensus-based guideline for children and young people who require tone management caused by spasticity and/or dystonia, to inform best practice standards of care.
Method
A Delphi process will be used to gather expert opinions and achieve consensus on regional standards of care for children with hypertonia. Stakeholders will engage in iterative rounds to identify and prioritise key elements for inclusion in the standards of care.
Output
Consensus-based guidelines will act as standards of care for each hospital in the region and the tertiary centres. They can be used by clinicians across the regional network. It is anticipated that the standards will support decisions about treatment and reduce variation in practice.
How to get involved: