The Tony Hudgell Rehabilitation Programme

Hosted by the South Thames Paediatric Network, in collaboration with Evelina London. Funded by Evelina London Charity, on behalf of the Tony Hudgell Fund

 Help us to improve care for children and young people with movement difficulties.

About the project

Some children and young people have conditions like Cerebral Palsy, Brain Injury, or other neuro-disabilities that affect how their muscles work. These conditions can cause muscle tightness or stiffness, which can make it harder for your child to move, sit, walk, or do everyday tasks. This muscle tightness is sometimes called hypertonia, spasticity, or dystonia. If your child finds that their muscles feel tight or hard to control, or if their body doesn’t always do what they want it to do, they may have hypertonia. Tone management treatments help reduce physical challenges and improve children’s quality of life.

    Why Is This Project Important?

Right now, there are no consistent standards across the NHS for how children with neurological movement disorders should be treated. This means that the care families receive can vary, depending on for example, where they live. We want to improve services to: Make sure children and young people get the right care at the right time, without needing to travel too far. Help children and young people live their best life, by ensuring they can access tone management treatment(s) from skilled professionals, when they need it.

Our Goals

Consistent Care

Develop agreed standards of care across South London and South East England, so that children and their families in the region can access consistent and high-quality support

Clear Pathways

   Improve pathways of care so that children and families know what to expect and where to go for help

Joined-up Services

Understand how different services (local GPs, hospitals, and specialist centres) can work better together to support children and their families.

To achieve this, we will be engaging with people across different levels, including doctors, nurses, allied health professionals, clinical commissioning bodies and vitally, children with neurological movement disorders and their families.

               Take Part in the Delphi Study

            Round 1 of the Delphi study is now LIVE!

To take part, you must:

  • Be a parent or carer of a child or young person with a neurological movement disorder (such as Cerebral Palsy, Brain Injury or another neuro-disability)

  • Live in the South Thames region (South London, Kent, Surrey or Sussex)

Before deciding whether to participate, it is important that you understand the purpose of the study and what it will involve.

Please take time to read the following information sheet, to find out more about your role in the study: ‘information for parents’

To participate in round 1 of the Delphi survey, please click here or scan the QR code.

Round 1 will close on 29th April 2026 (subject to the recruitment of enough participants)

To get involved in the Delphi Study please click here or scan QR code