Rationale

There are currently no agreed standards for the management of hypertonia in children and young people with neurological movement disorders, and treatment varies significantly across centres.

Aim

To develop a consensus-based guideline for children and young people who require tone management caused by spasticity and/or dystonia, to inform best practice standards of care.

Method

A Delphi process will be used to gather expert opinions and achieve consensus on regional standards of care for children with hypertonia. Stakeholders will engage in iterative rounds to identify and prioritise key elements for inclusion in the standards of care.

Output

Consensus-based guidelines will act as standards of care for each hospital in the region and the tertiary centres. Agreed standards will be reported on this website in July 2025.They can be used by clinicians across the regional network. It is anticipated that the standards will support decisions about treatment and reduce variation in practice.

How to get involved:

For children and young people

For parents and carers

For professionals